What are the specialized centers for rare in Athens
Her issue direct access to patients with rare diseases in holistic health care and improving their quality of life affects o Professor of Hematology-Oncology, Rector of EKPA, Athanasios Dimopoulos on the occasion of World Rare Diseases Day. The Medical School of EKPA has created Rare Disease Expertise Centers.
Despite the goal of improving the provision of health care, there are difficulties due to the relative lack of epidemiological and scientific data. more than 8,000 diseases have been recorded to date as rare. It is estimated that approximately 10% of the general population will be infected at some point during his life. It is estimated that almost 30 million people in the European Union and around one million Greeks are or will be affected by a rare disease.
The Rare Disease Expertise Centers of the Medical School of the National and Kapodistrian University of Athens are staffed by people with specialized knowledge to diagnose, care for, monitor and manage these patients. They also have him necessary equipment, according to Mr. Dimopoulos. The centers offer high level of health services, shape them Guidelines and contribute to promoting researchensuring that the care provided has as focus on the patient. They cooperate systematically with patients’ associations, but also with other centers and networks at national and level level. The centers are as follows:
- Center for Rare Systematics Expertise A.Inflammatory and Autoimmune Diseases, Clinic of Pathological Physiology (“LAIKO” Hospital)
- His Rare Disease Expertise Center Connective Tissue and Musculoskeletal Diseases, Clinic of Pathological Physiology (“LAIKO” Hospital)
- His Rare Disease Expertise Center Connective Tissue and Musculoskeletal Diseases, AD Teaching Pathology Clinic and Special Nosology, Autonomous Rheumatic Diseases Unit (“LAIKO” Hospital)
- Center of Expertise Rare Endocrinological Diseases, AD Pathology Clinic, Endocrinology Unit (“LAIKO” Hospital)
- Center of Expertise Rare Endocrine Diseases of Adults, Rare Disorders of Calcium and Phosphorus Metabolism, AD Pathological Clinic, Endocrinology Unit (“LAIKO” Hospital)
- Center of Expertise Rare Neuroendocrine Neoplasms, AD Teaching Pathology Clinic and Special Nosology, Endocrinology Unit (“LAIKO” Hospital)
- Center for Expertise of Rare Auto-Inflammatory and Autoimmune Diseases, Primary Teaching Pathology Clinic and Special Nosology, Autoimmune Rheumatic Diseases Unit (“LAIKO” Hospital)
- Rare Expertise Center Autoimmune and Autoinflammatory Diseases, AD Neurological Clinic (“AIGINITIO” Hospital)
- Rare Expertise Center Epileptic Diseases, AD Neurological Clinic (“AEGINITIO” Hospital)
- Rare Expertise Center Of Neurological Diseases, AD Neurological Clinic (“AEGINITIO” Hospital
- Rare Expertise Center Neuromuscular Diseases, AD Neurological Clinic (“AEGINITIO” Hospital)
- Rare Expertise Center Hematological Diseases of Children and Adults, 2nd Clinic of Venereal and Skin Diseases (ATTIKON Hospital)
- Rare Expertise Center Endocrine Diseases of Children, Primary Pediatric Clinic, Unit of Endocrinology, Metabolism and Diabetes (“Hagia Sophia” Hospital)
- Rare Expertise Center Of Genetic Predisposition Diseases in Cancer., AD Pediatric Clinic, Unit of Special Therapies of Hematology-Oncology (“AGIA SOFIA” Hospital)
- Rare Expertise Center Hematological Diseases of Children, AD Pediatric Clinic, Mediterranean Anemia Unit-Hereditary Anemias (“AGIA SOFIA” Hospital)
- Rare Expertise Center Of Pediatric Cancers, Pediatric Clinic, Department of Pediatric Hematology-Oncology and Special Hematology-Oncology Unit (“AGIA SOFIA” Hospital)
- Rare Expertise Center Adult Nephrological Diseases, Nephrology and Kidney Transplant Clinic (“LAIKO” Hospital)
- Rare Expertise Center Adult Hematological Diseases, Hematology Clinic (“LAIKO” Hospital).