Christophe Jobazé has accustomed us to taking up sporting challenges, always for a good cause. He promotes scientific and medical research and this Saturday, May 28, he is committed to the association Enfants de la Lune, which will be present.
Christophe, in a private swimming pool in Pringy, performed series of four minutes of apnea with two minutes of breath recovery between each immersion, for 1 hour 25 minutes. A challenge for the benefit of research on rare diseases. This exercise requires extreme rigor in its preparation and execution due to the constraints of endurance apnea itself.
Children of the Moon is a hereditary disease of very rare genetic origin (1/1,000,000). It is characterized by excessive sensitivity of the skin to ultraviolet rays, eye disorders and a greatly increased risk of developing skin or eye cancer.
Concretely, DNA repair mechanisms are inoperative. With no curative treatment available, patients should adopt preventive measures to avoid exposure to ultraviolet radiation. Thus, outings must be interrupted as much as possible during the day, even in overcast weather. On the other hand, there is no risk in going out at night. The windows of the house must be equipped with anti-UV filters.