Through Margot Nicodemus
Her “little warrior”, that’s how the mother of Nohame, five years old, qualifies him on the Facebook page that she is dedicated to her family’s struggle. And indeed, the little boy, who resides at Rouen (Seine-Maritime) with her parents Sarah and Benoît, saw the dawn of her life punctuated by hospital stays and treatments. At the age of two, she was diagnosed with leukemia, and then complications detected, mainly because Noham has another disease, trisomy 21.
The rest of the treatment … in Nantes
“There are treatments he just couldn’t stand,” says Sarah, 25, also the mother of two other boys aged eight and two and a half. The leukemia required that the child remains hospitalized for a whole year at the Rouen University Hospital, with a visit to the intensive care unit. Today, and after a period of one year of remission, Nohame has unfortunately relapsed. “We were told on August 17, 2021, because he continued to have regular blood tests. “
The family has no other choice but to ask for help, in particular because the rest of the treatment of the little boy will be at the Nantes hospital (Loire-Atlantique).
It will be a question of taking cells in Nohame, and it was either in Paris or in Nantes. There was only room in Nantes. Today, he no longer works, and will have to follow physiotherapy sessions. But it’s going to take a lot of effort from him.
Substantial additional costs
Nohame will soon have to spend 30 days – 15 days of hospitalization, 15 days of surveillance – in this new hospital. And if the medical interventions and the stays are supported, in particular by the association Espoir et vie, the sides are very difficult to finance for the parents, respectively a stay-at-home mother and an employee in the building.
The journeys to Nantes, as well as the meals there, then the material to help the little boy to wake up, to return to spend sums from which Sarah and Benoît do not benefit. “We recently purchased a double stroller to transport Nohame and his little brother. This has already put us in the red… ”, Sarah despairs.
The kitty that they created in all humility thus remains their main way out. For those who would like to contribute, here is the link.
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